The New Sjogren's Syndrome Handbook - What books do you look to for good Sjs information? Which books have you read that you felt were useless or misleading? Or especially insightful? For her particular situation, she chose The New Sjogren's Syndrome Handbook edited by Daniel J. Wallace, M.D. and The Sjogren's Syndrome Survival Guide by Terri P. Rumph Ph.D, and Katherine Morland Hammitt.
Andrea's question provided an opportunity for me to scrutinize my little library of books focused on autoimmune disease, and sent me off to search for more titles that may be of interest.
share his story:
Hello All,Found at http://health.groups.yahoo.com/group/helminthictherapy/message/6599
Though the majority of people using helmiths for auto-immune disorders meet with moderate
to near complete success– with a few exceptions, most of these people getting helmiths
who have success simply get on with their lives and no longer post here.
I am one of the lucky people who have had great success. This was for Sjogren’s Syndrome.
The course of my disorder had been steady, and had led to some very scary problems when
my internal organs- like my lungs- started to be involved. I was told that the next step for me
was a chemotherapy agent like methyltrexate.
This was not an appealing option, so, like many of us, I started looking at medical research
for other options. One new direction that research seemed to point to with some good
possibility of success seemed to be parasites as a treatment for auto-immune disorders.
After I was inoculated with Necator Americanus in the Fall of 2007 by Auto-Immune Therapies,
I had a near remission of my symptoms over the next year. This is unheard of in the course of
Sjogren’s to my knowledge. My disorder is now back to the level I was at one year before I was
diagnosed in 2002.
* Periodically I like to put my name out there as someone who can discuss this with people who
would like to speak to an actual person who has tried this treatment in order to hear first hand from
one of Auto-Immune Therapies clients about the process of inoculation, infection, and the company
I dealt with.
BTW- I can personally vouch for Marc Delaberra and Jasper Lawrence. They are exceptionally
conscientious, helpful, and sincere people… some of the finest people I have ever dealt with in
business. (ps. I have no financial interest of any kind with Auto-Immune Therapies).
If you wish, feel free to call me from 3pm-10 pm Saturday through Sunday, or after 8pm any other
day…
Cal ph. 503 949-1162 USA, Pacific Time Zone, Please Mention Parasites
What Is Sjogren’s Syndrome?
Sjogren’s Syndrome is a chronic autoimmune disease that affects more than four million Americans today. It is also called Mikulicz disease and Sicca syndrome. When someone has Sjogren’s Syndrome, their white blood cells attack the glands in their body that produce moisture. At the present time, there is no known medical cure for this disease. Scientific studies have determined that this disease might be hereditary, but other studies find no known cause for the development of Sjogren’s Syndrome.
How Do I Know If I Have Sjogren’s Syndrome?
The main symptoms of Sjogren’s Syndrome are dry mouth and dry eyes, but this disorder can also cause other parts of the body to function incorrectly. The central nervous system, gastrointestinal system, lungs, pancreas, liver, blood vessels, kidneys, and pancreas are also affected by Sjogren’s Syndrome. This disease can also cause those afflicted to have joint pain, excessive fatigue, skin rashes, and a cough that lingers. Those with Sjogren’s are at a higher risk of developing lymphoma.
Women Are More Susceptible
Sjogren’s Syndrome is one of the most common autoimmune disorders known to man. For some reason, women are more prone to developing this disease. Nine out of ten of the people who have Sjogren’s syndrome are women. Sometimes, Sjogren’s Syndrome is the only disease present, while other patients have Sjogren’s along with another autoimmune disease such as lupus or rheumatoid arthritis.
Lack of Saliva and Oral Health
A dry mouth is often one of the first signs of Sjogren’s Syndrome. Without enough saliva production, the mouth environment becomes unbalanced, with poor oral health as a result. The appearance of the teeth can be affected, the tongue is prone to infections, and bad breath is a daily occurrence. Gum disease is a possibility, as well as irritation and possible infection of the other dry tissues in the mouth.
Commercial Oral Care Products and Sjogren’s Syndrome
The lack of saliva causes the bacterial level inside the mouth to go awry. Good oral care is very important for those who are suffering from the pain and embarrassment that Sjogren’s Syndrome brings to their lives. Without the daily habit of good oral hygiene, the bad bacteria in the mouth can multiply and cause many problems. Commercial toothpastes and mouthwashes contain ingredients that can further dry out the gums and mouth tissues. If you have Sjogren’s Syndrome, you must be very careful about what kind of oral care products you use. Anything that further dries the mouth environment can aggravate your dry mouth symptoms.
